Workbook final

056 - Picture my participation, Child and Adolescent Health Service,

Australia

ONTACT

Child and Adolescent Health Service

Ms. Claire Willis

Australia

+61 4162 466 27

VERALL GOAL

MISSION

The conceptualization of "Picture my Participation" was developed following the completion of a UNICEF project that

aimed to provide a comprehensive manual to aid in the identification and monitoring of children with disabilities in low

and middle income countries (LAMI) to ensure their current needs and challenges are understood but also ultimately

addressed. Therefore, the aim of this project was to develop a culturally appropriate measurement tool that employs

culturally respectful processes to capture participation outcomes distinctive to children and youth with disabilities in

LAMI countries and/or marginalised communities. 'Picture My Participation' is a paediatric self-report tool that uses

pictures to discuss health-related topics, and to identify participation frequencies, levels of involvement, and barriers

and facilitators to a child’s participation in home, school and community settings. Using the tool, this project hopes to

gain an accurate understanding of the participation outcomes of children with disabilities in LAMI countries, and

ultimately intervenes in ways that will effectively and sustainably address their needs.

HE SOLUTION THAT HAS BEEN DEVELOPED

The development of 'Picture my Participation' was guided by the International Classification of Functioning, Disability

and Health-Child and Youth version, the Convention on the Rights of the Child and the Convention on the Rights of

Persons with Disabilities, where articles of the conventions were linked to ICF participation domains. It was developed

as an adaption of existing participation outcome measures, the Participation and Environment Measure for Children and

Youth and the Paediatric Activity Card Sort. It has been developed for children from marginalised communities and low

socio-economic environments, in collaboration and continual consultation with these children and communities. The

tool can be used as a talking mat or via application software that can collect both population data and data for clinical

decision-making. 'Picture My Participation' is intended to be used with children but can be administered with significant

others along the principles of kinship.